for patient ociations, progress but can do better

During the global march against endometriosis EndoMarch, organized by the French ociations ENDOmind and My endometriosis, my suffering, on March 24, 2018, in Paris.

Without them, Emmanuel Macron might never have said these words: “Endometriosis is not a woman’s problem, it’s a social problem. So, it was time for us to give their fight national visibility. » It was January 11, 2022. A national strategy was launched by the President of the Republic and France became the second country, behind Australia, to adopt such a policy. A victory for patient ociations who have long demanded that this disease, which affects one in ten women of childbearing age, is a matter of public health. “Ten years ago, to have an article on this disease in a newspaper, it was very complicated. Today, there is one per day published »recognizes Priscilla Saracco, president ofENDOmind, one of the two main ociations.

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One of the three pillars of this national strategy is based on the creation, by the end of 2023, specific courses, in each region, with a graduated care offer. A policy that Agnès Buzyn had defended when she was Minister of Health, announcing an action plan in 2019. Objective: to have health professionals working together in the same territory in order to better guide patients and improve care.

“The idea is that the expert surgeon, specialist in endometriosis at the hospital, who must take care of the most serious cases, is the last resort. At Saint Joseph’s Hospital [à Paris]we have 800 support requests per month, it’s complicated to answer themsays Erick Petit. But the sinews of war is the training of general practitioners, school nurses, midwives, but also pharmacists, occupational physicians…” Radiologist, head of the endometriosis center of this establishment and co-founder of the ociation Resendo, a city-hospital network created in 2015, the latter regularly takes up his pilgrim’s staff to train general practitioners.

Long term condition

” Things are moving forward “to use the words of Yasmine Candau, president of the EndoFrance ociationcreated in 2001. Care networks already exist in five regions (four in Ile-de-France, one in Provence-Alpes-Côte d’Azur, Auvergne-Rhône-Alpes, Brittany and New Aquitaine), in all the others, they are in the process of being created. “This structuring comes late and will take time but, for future generations, it is a good thing, it will reduce the time to diagnosis”she points out.

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